Madison & Friends
Madison OSU & Angel Photos
Brian King, professional photographer has done all of Madison's OSU & Angel pictures, including the following,
and has done an incredible job for us. Brian is currently with HR Imaging Partners Inc. and can be reached
at 800-245-0223 or 614-334-8106 or bking@hrimaging.com or at
www.rootohio.com
Thanks Brian!
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Dr. Bach's 2002 Conference Friends
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Hilary Duff Supporting Madison
On August 24th, 2005 Madison's dream came true when she got to meet Hilary Duff. Hilary wore the wristbands during the whole concert. Madison has been through several difficult periods over the last 2 years and Hilary has always been the one who she turns to, to help her get through them. Thank you Miss Duff for being one of Madison's angels and helping to spread awareness!
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OAR Selling & Wearing Wristbands
Look who's wearing the SMA Awareness "Believe in Miracles" wristbands! The band O.A.R.! O.A.R. is also selling the SMA Awareness wristbands on tour. Thanks guys!
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SMA Angels and Celebrities Wearing Their SMA Awareness Items
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Pictures from Madison's 18th Birthday Celebration
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Madison's 18th Birthday Smile. Her Eyes Still Twinkle! |
Madison with her 18th Birthday Balloons. |
Madison with Her American Girl Doll of the Year, Grace. |
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Birthday Decorations with the Theme Based on the Disney Movie, "Tangled." |
Birthday Flower Cake from the Shofner Family. |
Madison Admiring Her "Tangled" Theme Birthday Decorations. |
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Madison's Roses from Her Uncle, Godfather and Grandparents. |
Small Birthday Cake from Neighbors, The Hammett Family. |
"Tangled" Theme Birthday Cake with a Flaming Rose Candle. |
Pictures from Easter 2015
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Madison after her first four loading doses of Spinraza!
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Our miracle did it! Today she received her first loading dose of Spinraza, the new FDA approved drug treatment for Spinal Muscular Atrophy. When you BELIEVE - Miracles Happen!
Click on the link below to see a video of Madison's progress after her first loading dose of Spinraza.Video of Madison After First Spinraza Loading Dose
Two internet friends meet at Walt Disney World
Madison Reed and Hannah Price have been friends on the internet for many years. They were finally able to meet in person and spent a wonderful day together with other princesses at Epcot in Walt Disney World on May 14, 2019. It is with great sadness we announce Hannah earned her angel wings on April 26, 2021. |
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In loving memory of Hannah Nicole Price October 27, 1996 - April 26, 2021
Forever 24 years old
Celebrating 25 years of our beautiful rose...
Born innocent and pure of heart! Practically perfect in every way. Madison Rose's beauty is evident. But every rose has it's thorns. Her thorn is Spinal Muscular Atrophy type 1.The ability to bloom and grow despite this genetic flaw is what's truly remarkable and a true miracle. With courage, inner strength, love, care and support she has continued to bloom and survive turning 25 years old on February 4th, 2022!
Help us celebrate this miraculous milestone by wishing Madison a happy birthday and donating to further SMA research that will help treat Madison and the older SMA population: Madison's 25th Birthday Fundraiser.
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