Welcome
Miracle for Madison & Friends (MFM&F) is dedicated to raising money to help OSU researchers find a cure for Spinal Muscular Atrophy (SMA). This website is packed with information on SMA, including ways to help find a cure, updates on research, merchandise to show your support as well as pictures and stories about Madison and her many friends.
Announcements
New Research Funded By Miracle For Madison and Friends
Using symptomatic Delta7 SMA mice OSU researchers treated them with a combination of an ASO similar to Spinraza ans[sic] another compound similar to Evrysdi. The 2 treatments worked together to increase SMN and rescue the mice. Spinraza and Evrysdi combined should be considered for human clinical trial. Because of you and your donations breakthrough research is being done to further treatment options for older symptomatic children and adults.Dual SMN inducing therapies can rescue survival and motor unit function in symptomatic Δ7SMA mice.
Celebrating 25 years of our beautiful rose...
Born innocent and pure of heart! Practically perfect in every way. Madison Rose's beauty is evident. But every rose has it's thorns. Her thorn is Spinal Muscular Atrophy type 1.The ability to bloom and grow despite this genetic flaw is what's truly remarkable and a true miracle. With courage, inner strength, love, care and support she has continued to bloom and survive turning 25 years old on February 4th, 2022!
Help us celebrate this miraculous milestone by wishing Madison a happy birthday and donating to further SMA research that will help treat Madison and the older SMA population: Madison's 25th Birthday Fundraiser.
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Two internet friends meet at Walt Disney World
Madison Reed and Hannah Price have been friends on the internet for many years. They were finally able to meet in person and spent a wonderful day together with other princesses at Epcot in Walt Disney World on May 14, 2019. It is with great sadness we announce Hannah earned her angel wings on April 26, 2021. |
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In loving memory of Hannah Nicole Price October 27, 1996 - April 26, 2021
Forever 24 years old
Ohio girl with Spinal Muscular Atrophy plays a crucial role in new FDA-approved therapy
Madison recently was featured in a local news segment about her role in inspiring research toward a cure for Spinal Muscular Atrophy as well as her family's journey with SMA.Click on the picture or link below to see the video and accompanying article.
Ohio girl with Spinal Muscular Atrophy plays a crucial role in new FDA-approved therapy
FDA Approves First Gene Therapy Treatment for SMA Developed at the Abigail Wexner Research Institute at Nationwide Children�s Hospital
COLUMBUS, Ohio � Today, the Abigail Wexner Research Institute at Nationwide Children�s Hospital praised the Food and Drug Administration (FDA) for its approval of Zolgensma� for spinal muscular atrophy (SMA) following decades of research in its Center for Gene Therapy to help patients with neuromuscular diseasesClick on the link below to read the entire announcement.
Our miracle did it! Today she received her first loading dose of Spinraza, the new FDA approved drug treatment for Spinal Muscular Atrophy. When you BELIEVE - Miracles Happen!
Click on the link below to see a video of Madison's progress after her first loading dose of Spinraza.Video of Madison After First Spinraza Loading Dose
Madison after her first four loading doses of Spinraza!
Madison who has SMA Type 1 has received eleven doses of Spinraza as of July 25, 2019. The picture collage below shows her after each of her four loading doses. Click on the picture or link below to read an article about Madison's status after her third loading dose of Spinraza.
Hope for Madison: New drug to treat SMA shows promise
FDA Approves First Drug for Spinal Muscular Atrophy
The U.S. Food and Drug Administration today approved Spinraza (nusinersen), the first drug approved to treat children and adults with spinal muscular atrophy (SMA), a rare and often fatal genetic disease affecting muscle strength and movement. Spinraza is an injection administered into the fluid surrounding the spinal cord.Click on thelink below to read the entire announcement.
FDA Approves First Drug for Spinal Muscular Atrophy
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